Holly Longstaff

Director, Privacy and Access, PHSA Research and New Initiatives

Provincial Health Services Authority

Holly Longstaff

Director, Privacy and Access, PHSA Research and New Initiatives

Provincial Health Services Authority

Areas of interest

Research privacy and research ethics

Biography

Holly is responsible for guiding the development, recommendation and implementation of innovative approaches to privacy policy and practice to build accountable information stewardship and privacy conscious practices that enable the execution of PHSA’s expanded mandate and the conduct of health research. She advises on the privacy requirements relating to new and expanded provincial initiatives working closely with PHSA’s Information, Access and Privacy, and Legal Services teams. She also provides leadership in developing and implementing governance mechanisms to enable nimble, multidisciplinary review of privacy and security requirements for new and expanded initiatives and research, including province-wide platforms and systems, digital and information technologies, and data access/sharing. Holly is a PhD level trained ethicist and research consultant. She serves as the ethicist on the BC Cancer Research Ethics Board and a US-based IRB. She has worked as a consultant for Health Canada, the Public Health Agency of Canada, and the CIHR Ethics Office and her work has been published in a variety of journals including CMAJ, Trends in Neurosciences and Cell Stem Cell.