Collaborator Studies 

 

Study 2: Interview-based study

The SMART Lab at the University of British Columbia is conducting an interview study to better understand autistic adolescents’ experiences living with an autistic parent. Our goal is to better understand their perspectives and the dynamics of families with a shared autistic identity. 

 

What does the study involve?

  • An online Zoom interview between the adolescent/youth and the researcher (45-60 minutes). Questions will explore topics like autistic identity, daily life, and interactions with their parents. Accommodations for the interview are available.

  • A 5-minute demographic questionnaire will also be completed prior to the interview by the parent. 

Who Can Participate?

  • Both an autistic parent and adolescent/youth must participate in the study.

  • The adolescent/youth must be 13 to 21 years old with a formal autism diagnosis living in Canada and must be aware of their own and their parent’s autistic identity.

  • The parent must identify as autistic or have a formal autism diagnosis.

Will there be compensation?

  • Participating families will receive a $25CAD e-gift card of their choice.

What is the next step?

  • Please complete a 2-3-minute screener to determine if you can participate in the study by clicking on the following link: https://ubc.ca1.qualtrics.com/jfe/form/SV_08SmUtkS5XlvF6S

What if I have questions?

  • For more information on one or both studies or if you have questions or concerns, please contact Melissa Lazo (Co-investigator; melilazo@student.ubc.ca) and/or Dr. Thomas Schanding (Principal investigator; Thomas.schanding@ubc.ca).

Ethics ID# H25-01356


Study 1: Survey-based study

The SMART Lab at the University of British Columbia is conducting a survey study to better understand the mental health and masking of autistic teens with and without autistic parents. By understanding these relationships, our goal is to help inform how we support autistic adolescents and their families.

What does the study involve?

  • A 10-minute online survey completed by a parent.

  • A 15-20-minute online survey completed by an autistic adolescent/youth ages 13 to 21 years.

  • A 5-minute Zoom video call prior to survey completion to verify participant identities and reconfirm consent. 

Who can participate?

  • Both a parent and autistic adolescent/youth must participate in the study.

  • Adolescent/Youth must 1) be 13 to 21 years old, 2) have an autism diagnosis, 3) live in Canada, the USA, England, or Australia, and 4) not have a history of intellectual disability.

  • Parent must live with the child a minimum of 3 days per week. Autistic and non-autistic parents can participate.

Will there be compensation?

  • Families will have the opportunity to enter a draw for a chance to win one of 10 $50CAD e-gift cards to thank you for your time.

What is the next step?

  • Please complete a 2-3-minute screener to determine if you can participate in the study by clicking on the following link: https://ubc.ca1.qualtrics.com/jfe/form/SV_4V20HTRZw8HJTfM

     

    Ethics ID# H25-01356

Participants needed! Our research team at York University (led by Dr. Jonathan Weiss) is conducting an online study about the positive experiences (flourishing) of visible minority families of autistic youth and young adults (aged 10-30) living in Canada.

You will be asked to complete an online survey (30-45 minutes) about your child, family flourishing, and experience living in Canada. To thank you for your time, you will be eligible to win one of ten $100 e-gift certificates.

 

Click below for the study flyer available in different languages:

 

 

 

English

​中國人 (Chinese)

ਪੰਜਾਬੀ (Punjabi)

عربي (Arabic)

Español (Spanish)

Tagalog

Türkçe (Turkish)

 

If you are interested in participating in this study, please scan the QR code on the flyers or click the link below:

Sign-up link: https://yorku.questionpro.ca/familyflourishingstudy1

 

All information is kept confidential, and this research has been approved by the York University Human Participants Review (‘Ethics’) Sub-Committee.

UBC ASAP Lab: SCHEMA STUDY 

PAID RESEARCH OPPORTUNITY

https://ubc.ca1.qualtrics.com/jfe/form/SV_0k4rlcA33CLdZKm

Are you a man on the autism spectrum (ages 18-30)? Participate in UBC’s SCHEMA study exploring social and emotional processing in young adults.

What’s involved?

·      1 in-person session at UBC (2 hours)

·      2 online sessions (45 min each)

·      Compensation: $20 per hour (approx. $70 total) in an e-gift card of your choice

Eligibility:

·      Fluent in English

·      Aged 18-30 years old

·      No history of intellectual disability, psychosis, epilepsy, head injuries (last 6 months), or certain eye conditions (e.g., colour blindness, eye movement issues)

To Learn More & Participate

·      If you are interested learning more about the study and in participating in this study, please fill out the eligibility screener survey (~3 min) here: 

Note:

·      Please note that we ask for our participants to send us/bring a documentation in support of their autism diagnosis.

·      Please note that if you choose to like, comment or follow any social media related to this ad, you will be publicly identified with the study.

Ethics ID#: H23-00378

Barriers to healthcare for minority language children on the autism spectrum

 

 

  • Participants needed for a study to improve healthcare services for minority speaking children on the autism spectrum
  • You are eligible to participate if you are either:
    • an adult on the autism spectrum from a minority-language speaking family
    • a caregiver of a child on the autism spectrum (between 0-6 years old) and a minority-language speaker 
    • a community organization working with children on the autism spectrum who are minority-language speakers 
    • a clinician who works with children on the autism spectrum who are minority-language speakers
  • Participation in this study will involve taking part in a focus group interview (approx. 2 hours in length) either in person or by Zoom
  • To participate, please contact: language.research@autismalliance.ca

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    Face Recognition

    Researchers at UBC Department of Ophthalmology and Visual Sciences are conducting a study aimed at understanding whether the social difficulties experienced by some people with autism are related to different processing of visual stimuli.

    Who Can Participate?

    Individuals 16 years of age or older with or without a diagnosis of autism spectrum disorder (ASD).

    What to Expect?

    • You will complete a few questionnaires and a few tests on the computer.
    • You will be compensated $10 per hour for your participation. The experiement takes between 2 to 4 hours to complete.

    Please contact Todd Kamensek at toddk14@mail.ubc.ca if you are interested in participating or for more information about the study.

    UBC Pain Study 

    Everyday experiences in autism

    Researchers at BC Children's Hospital Complex Pain Service, Sunny Hill Health Centre, and UBC Department of Pediatrics is looking for your input to help us understand the experiences of everyday pain for autistic youth. Our goal is to improve healthcare for autistic young people and we would love to hear from you!

    Who Can Participate?

    • Autistic persons between the ages of 8 and 25 living in BC.

    What To Expect:

    • The study includes a questionnaire and a short check-in survey that you will do 3 times a day for 2 weeks.

    • You can skip any questions you don't want to answer, and your privacy, comfort, and safety will be a priority.

    • Participants will receive a $20-$60 gift card for their time.

    Please contact our team at ASD&Pain@bcchr.ca or 604-875-2000 ext. 5445 to learn more.

    Roleplaying / Larping in ASD 

    Posted on behalf of Kari Gustafson, PhD student at Simon Fraser University.

    Do you have an ASD diagnosis, or are you the parent of an individual with an ASD diagnosis?  Do you (or does your child) participate in larping (live action roleplaying) or tabletop roleplaying / RPG games (such as Dungeons & Dragons)?  I am a PhD student in the Faculty of Education. I would like to interview individuals from ages 13 to 60 with ASD (and/or their parents) about their experiences with larp and roleplaying activities and groups.

    The interview can take place anywhere you choose, and will take 60-90 minutes. As a thank-you for your time I can offer you a $20 gift card. If you would like more information or are interested in participating, please contact Kari Gustafson at kigustaf@sfu.ca.