Collaborator's Studies

Barriers to healthcare for minoritylanguage children on the autism spectrum

 

  • Participants needed for a study to improve healthcare services for minority speaking children on the autism spectrum
  • You are eligible to participate if you are either:
    • an adult on the autism spectrum from a minority-language speaking family
    • a caregiver of a child on the autism spectrum (between 0-6 years old) and a minority-language speaker 
    • a community organization working with children on the autism spectrum who are minority-language speakers 
    • a clinician who works with children on the autism spectrum who are minority-language speakers
  • Participation in this study will involve taking part in a focus group interview (approx. 2 hours in length) either in person or by Zoom
  • To participate, please contact: language.research@autismalliance.ca

    •  

     

    Face Recognition

    Researchers at UBC Department of Ophthalmology and Visual Sciences are conducting a study aimed at understanding whether the social difficulties experienced by some people with autism are related to different processing of visual stimuli.

    Who Can Participate?

    Individuals 16 years of age or older with or without a diagnosis of autism spectrum disorder (ASD).

    What to Expect?

    • You will complete a few questionnaires and a few tests on the computer.
    • You will be compensated $10 per hour for your participation. The experiement takes between 2 to 4 hours to complete.

    Please contact Todd Kamensek at toddk14@mail.ubc.ca if you are interested in participating or for more information about the study.

    Living Lab at Home (LLAH)

    Researchers at BC Children's Hospital Complex Pain Service, Sunny Hill Health Centre, and UBC Department of Pediatrics are conducting the "Living Lab at Home (LLAH)" study to understand how youth and their families feel about participating in a study that uses real-time, home-based data collection methods. The goal of this research is to be able to expand access to research participation to a wide range of children and youth.

    Who Can Participate?

    • Youth ages 12 to 18 years old with Autism Spectrum Disorder (ASD), Cerebral Palsy, or Complex/Chronic Pain and their families who live in British Columbia and have verbal and basic reading and comprehension skills in English.

    What To Expect:

    • You will be asked to fill out short questionnaires on a smartphone, wear an activity monitor, and collect saliva samples for 14 days which will take no more than 20 minutes per day.
    • You will complete a brief interview with a researcher at the end of the study about your experience.
    • You will receive up to $60 in gift cards for your time.

    Please contact Marie-Noelle Wharton Cancio at mn.wharton@bcchr.ca to learn more about the study or how to participate.

    Roleplaying / Larping in ASD 

    Posted on behalf of Kari Gustafson, PhD student at Simon Fraser University.

    Do you have an ASD diagnosis, or are you the parent of an individual with an ASD diagnosis?  Do you (or does your child) participate in larping (live action roleplaying) or tabletop roleplaying / RPG games (such as Dungeons & Dragons)?  I am a PhD student in the Faculty of Education. I would like to interview individuals from ages 13 to 60 with ASD (and/or their parents) about their experiences with larp and roleplaying activities and groups.

    The interview can take place anywhere you choose, and will take 60-90 minutes. As a thank-you for your time I can offer you a $20 gift card. If you would like more information or are interested in participating, please contact Kari Gustafson at kigustaf@sfu.ca.